"Rare" but Not Uncommon: The Hidden Crisis of Rare Diseases
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases collectively impact millions of Americans, creating a healthcare system that's equal parts expensive, frustrating, and endlessly confusing. With 8% of US households reporting a rare disease diagnosis and healthcare costs hitting nearly $1 trillion, it's clear that rarity doesn't mean…